Inclusion Ireland today welcomed the decision by the Data Protection Commissioner (DPC) to open a statutory inquiry into data collection processes by the Department of Health.

Speaking following the announcement by the DPC, Loraine Dempsey, interim CEO of Inclusion Ireland, said: “We welcome this morning’s announcement by the DPC that they are opening a statutory inquiry into data processing practices at the Department of Health. We hope that the investigation is completed quickly to reassure families that their personal data is not being held for inappropriate purposes.

“After the Prime Time exposé, every family who has interacted with State agencies or advocated on behalf of a child with a disability is wondering if their information has been retained, or collated. Faith in the system has been seriously damaged.

“The Department of Health must act quickly to restore trust, by contacting all families affected by this issue as soon as possible. They must also make supports available to the families affected by this, many of whom will be understandably upset.”

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